We finally got to hold Brayden again!! We went to the hospital last night and almost stayed the night. We couldn't get enough!! He is completely off the feeding tube and all IV's now. The only thing we are waiting for is for the Phenobarbital level to be lower in his blood. They told us that it wasn't going to be drawn again until Monday, so we will be here for a few more days. I would rather have him here in good hands then go through another episode at home. So we will just pray and be patient. We are still a little cautious because he still has the possibility of having more seizures as the dosage drops.
The kid can definitely eat though. When we are not there the nurse is giving him about 100 cc of milk. I don't think he is going to have a nutrient problem. Most babies in the NICU are on a 3 hour feeding schedule. Not Brayden. He is what they call on demand. When he wants to eat he can. So that is a good thing.
Jon and I took about a million pictures of him last night. He was pretty animated with us once he woke up. We have been at the hospital all day again today. Hopefully tomorrow morning before we come here I can post the pictures. I don't think Brayden is too fond of the paparazzi, but he better start getting used to it.
Grandma and Grandpa W. drove 3 hours each way to see Brayden again today. They only stayed for a couple hours, but it was great to have them come visit again. Brayden was definitely excited as he was awake for most of the time they were here. Grandma O. is coming to visit tomorrow.
As for Jon and I, we are doing the best we can. We are hanging in there, trying to keep a positive attitude about everything. Jon has been amazing through all of this. We are just physically and mentally exhausted from all of the events this week. We are trying to get some sleep. Right before we lay down for bed and the second we wake up in the morning we are calling the nurses to make sure he made it through without any problems. So our minds are constantly on him. It definitely helps that we have so many people thinking and praying for him. It lifts our spirit to know that we have such great support. We can't thank everyone enough.
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7 comments:
Don't know if you got mt earlier comments,
Just heard about what has been happening with Brayden. Our thoughts and prayers are with you through this trying time.
we will keep you in our thoughts and prayers.
Things will get better.
Uncle Tom, Diane and the Girls
hey, jess and jon, been keeping tabs on you all since your mom sent this link wednesday. so very glad to hear that things are looking up for your adorable eating machine. we're thinking of you.
for all the rosers,
missy
Bless your heart--I'm sure it's so exhausting to be at the hospital all day and then come home and write an update. I'm so happy that you both finally got to hold Brayden again! Give him a big hug from us!
-Kristy, Joel, Reese, and Ryan
Hi Jess & Jon,
He's a beautiful baby, congratulations to you both. Your posts bring back a lot of memories for me, sounds like the NICU hasn't changed much, it's such an emotional experience. It's great that he didn't need to go on the respirator, and that he's got such an appetite, he's probably the biggest guy in the unit. It sounds like he's getting excellent care and improving daily, all good signs. If there's anything I can do to help let me know, I'm just down the road. Give him big hugs from Sabine and I, we can't wait to meet him!
-Denise
Hey Guys! :) We've been following the blog everyday and can't stop thinking about you three! We are so glad he is doing so much better! Brayden is one tough little cookie and there is no doubt in my mind that he is going to be one healthy little boy! We're both so excited to say that we have the cutest little nephew EVER and are ready to spoil the heck out of him! :) We're still keeping you all in our everyday thoughts and prayers and REALLY looking forward to seeing both of you and Brayden Michael again! Please know if there is anything you need, we're here for you! We Love You!!! xoxoxo
Love always,
Lauren and Josh :)
We are so happy things are looking up. Good to hear you got to spend all day and night giving little Brayden kisses and hugs. Give him a big hug for us.
We will keep you in our thoughts and prayers.
Jessica and Jon,
Brayden is so beautiful! We have been foloowing your blog everyday and thinking about all of you. We are so happy to hear that he is doing better. We can't wait to see him! You are in our thoughts and prayer everyday. Please know that we are here for you. Give Brayden a big hug from all of us.
Love,
Uncle Dan, Aunt Shelly, Amber and April
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