Brayden is still a movie star. They still have him hooked up to the electrodes and are monitoring his brain activity since they have switched medications on him. They started this second medicine a little after midnight yesterday. The doctors wanted him on the video monitoring for another full 24 hours with this new medicine to see if any seizures have occurred. Since some of the seizure might be smaller and have no outward physical signs.
The big downside to the medicine that they gave him is that it is a sedative, so they warned us that he is just going to sleep and be out of it when we see him. Their biggest concern was that it could cause respiratory depression and he would have to be placed on a respirator.
We went and saw him yesterday morning. As soon as Jon and I said hello to him he opened up his eyes and was fully aware that we were there. He actually stayed awake and looked at us for a good hour when we were visiting with him. Not a whole lot of movement, since he is slightly sedated. He sleeps a ton and he sleeps in the most adorable position with his arms straight up over his head and his legs spread out. We will take more pictures of him, but not until all the wires are taken off of him.
The doctors ordered that he could start being fed breast milk through a feeding tube so Jon and grandma W. got to feed him some milk yesterday. Since he was awake, we placed some on a pacifier so he could taste a little of it, but the rest of it went down the tube into his stomach. He handled the feeding really well and they have already upped the amount that he can eat since he is digesting it so well.
During our other visits that we made with him yesterday, he was out of it and just slept the whole time. We called in again this morning and he has gone more than 24 hours with out any outward seizures. They still have to have the neuro specialists review the data to see if there were any that occurred without any physical signs of the seizures. We are hoping that after the doctors visit with him this morning that they will order all the electrodes off so that we will be able to hold him. They are planning on keeping him on this medicine for another day or so and then try to get him back onto the first anti seizure medicine. We meet with the neurologist tomorrow, so hopefully we will have a better ideal of his overall status.
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3 comments:
thanks for the update jessie! I am thinking of you guys always...mwah
Hi~Congratulations, Brayden is beautiful! You don't know me, but I work for Grandma Patty. (You need to know that she carried Brayden's pictures with her everywhere today, and I don't expect that to stop anytime soon!) :) Just wanted you to know that you are all in my prayers...for healing in Brayden's body, for good rest and peace for all 3 of you...Blessings, Jennifer
I am sure it must be hard to not hold and cuddle him. Hopefully those electrodes will come off very soon!
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